Parents of children with Duchenne muscular dystrophy held a press conference today. Their demands remain steadfast: they are calling for their children to gain access to a new medication through a national programme. The parents emphasise that this medication has the potential to significantly slow the progression of the disease.

During the conference, the parents expressed their hope that the medication could enable their children to grow up, lead fulfilling lives, and buy precious time and a hope that future treatments will eventually provide a complete cure.

They highlighted that the medication in question already has FDA approval and is in use across Europe, the United States, and other countries. The parents pledged to continue their protests until their demands are met, including calling for public debates to be broadcast on the Georgian Public Broadcaster.